For the 25th Anniversary showing of the film GATTACA at the Michigan Theater in Ann Arbor, MI, Scott Roberts served as panelists in a pre-panel discussion about the ethical and societal implications of the issues depicted in the film.
An article was recently published in Alzheimer’s & Dementia: Translational Research & Clinical Interventions which describes the results of an online survey of clinical core leaders at National Institutes of Health-funded Alzheimer’s Disease Research Centers in the United States. The survey examined how individual centers within this national network are addressing a range of issues related to return of research results in their own longitudinal cohort studies. The findings indicate that many Alzheimer’s Disease Research Centers are disclosing a range of individual research results to their participants, with diagnostic and neuropsychological assessment findings more commonly returned than genetic or biomarker results. There was considerable variability across centers regarding return of results, including types of results disclosed, professionals involved in results disclosure, and practices used when returning results. The full article can be accessed below.
Roberts JS, Ferber R, Blacker D, Rumbaugh M, Grill J, for the Advisory Group on Risk Evidence Education for Dementia (AGREED) (2021). Disclosure of individual research results at federally funded Alzheimer’s Disease Research Centers. Alzheimer’s & Dementia: Translational Research & Clinical Interventions, 7:e12213.
Researchers from the University of Michigan School of Public Health and the Jackson Laboratory for Genomic Medicine will lead an interdisciplinary, multi-institution study of the ethical, legal and social implications of workplace genomic testing in the United States. Here is an article in the University of Michigan’s School of Public Health newsletter with more information about the project. Scott Roberts is a Co-Principle Investigator and Wendy Uhlmann is a Co-Investigator on the project.
We are excited to share the news that on November 2nd, the first Mood Lifters for Seniors pilot group launched. Another group is anticipated to begin in March 2021.
Sara Feldman, MPH who is a graduate student at the University of Michigan’s School of Public Health and member of the Roberts Research group has been awarded a predoctoral fellowship position in the U-M ELSI Research program. Congratulations, Sara!